Retinitis Pigmentosa (RP)

What is Retinitis Pigmentosa?

Retinitis Pigmentosa is the collective name for a group of hereditary conditions that have in common that they cause progressive degeneration of the retina (the light-sensitive ‘screen’ at the back of the eye). Often called RP for short.

The light receptors in the retina are called rods and cones. As a result of this eye condition, the rods, and at a later stage the cones, slowly die, resulting in reduced vision. The most important feature is box vision.

Being told that vision is affected can turn the world upside down. When the first emotions subside, the knowledge that one is not alone may provide support. There are many people in the same situation, some who have just been diagnosed themselves and some who have been living with it for years.

If one experiences visual impairment as a result, there are devices available to help with tasks that people have difficulty with. These aids can provide support with tasks that require vision and can help you continue to lead a full and independent life. It is often not about enlargement but about improving the contrast, which increases readability.

What are the symptoms of Retinitis Pigmentosa?

Symptoms include:

• in the early stages, suffer from night vision
• reduced peripheral vision
• tunnel vision

What can one expect from Retinitis Pigmentosa?

There is currently no cure. Scientists are constantly conducting research in search of treatments that can slow down or even eliminate this condition. An early diagnosis is important so that people can learn how to deal with this and how to get the most out of their residual vision.

Meer information on Retinitis Pigmentosa

There is extensive information available about Retinitis Pigmentosa. This information is intended to inform you about the most important aspects of this eye condition and is not intended to replace the information you receive from your doctor or eye specialist.